With much expectation, the world is waiting to see OkikiJesu
Olawuyi grab a fitting place in the Guinness Book of World Records. Many across
the world want to see this happen. And what that means is that a Nigerian child
is well on her way to making history once she scales the mountain of surgeries
standing in her path of life.
OkikiJesu Olawuyi was born without a skull but not without a will to live.
Bones from her hands are being obtained to construct a skull bone to help her
live. Amazingly, she is winning this battle for her life at John Hopkins
University in far away United States of America. There, the best hands the
world can assemble are with her every passing hour fighting a medical war to
give life to a miracle child who has announced to the entire human community
that she has something different to offer. First grade surgeons – irrespective
of colour, race and tongue are tasking their expertise to see that this wonder
of the 21st century lives to tell her story and reports say that they are doing
a great job to save her.
OkikiJesu is getting moral and material support from across the world to help
her live. An avalanche of support is coming her way. Her parents are carrying
the burden of pain and anguish with stoic patience. They are fighting to remedy
a medical case they cannot tell how it all started. The child needs a lot more
financial assistance to pull through, her father, Mr. Caleb Olawuyi, says. He
disclosed that she needed an additional $500,000 to undergo the final operation
that would enable her live a normal life. Experts say that is possible and they
can achieve that. While appealing for generous support from government,
corporate organizations and private individuals to help the baby live, Mr.
Olawuyi, has equally urged government to set up funds to assist babies
afflicted with critical ailments. Speaking straight from the heart, he noted
that one needed to be close to a child in pains to know how it feels.
Since news of the child’s medical condition was disclosed, the world has been aghast.
She was born on May 11, 2010 with a rare birth deformity which means over 50
per cent of her skull doesn't exist. The world has not seen anything of this
stuff. In recorded history, Sunday Sun gathered that this medical condition has
never been reported anywhere. The child’s condition is one that appears to have
turned medicine on its head, having thrown up tremendous professional challenge
to the human race. Now, the very best the world has known are fighting a
crunchy battle to overcome this, leaving many – particularly those with hearts
of stone- wondering if there is nothing they can offer to help.
Now from the home sector, help is coming for three-year-old Okiki and her
parents. Since the condition of the baby became public knowledge, a non profit
organization had stepped in to assist. Global Initiative for Peace, Love and
Care (GIPLC) has been doing all it can to give life to the child whose medical
condition is not traceable to her parents. With the assistance of the
organization’s Coordinator and Project Manager, Mr. Nuhu Kwajafa, the child and
her parents were on May 4, 2013, flown to the United States. There, she is
currently undergoing skull reconstruction surgery at the John Hopkins
University Medical Centre.
Now, the child’s and her father’s cry for help comes ringing through the
airways asking Nigerians to help her live. Here is a child the world is
interested in. The non-profit organization is doing its best at that level to
help her survive. Sunday Sun gathered that while the world was a short while
away from screaming uhuru at the wonderful breakthrough, an unforeseen
complication arose after over 14 hours of surgery. This followed
inconsistencies in her medical history. Besides, her case marked a maiden
attempt in paediatric neurosurgery. This, therefore, led to a further
accumulation of medical bills totaling over US$500,000. This bill is spiraling
every passing day OkikiJesu and her parents spend at the Johns Hopkins
facility.
Specialists in the USA have identified the rare birth deformity which OkikiJesu
is suffering, as Congenital Cranial Deficiency. Before now, she had been to
several hospitals but not cured, but luck flashed on her pathway when GIPLC,
which is based in Abuja took up her case. Sunday Sun learnt that since then, the
organization has recorded significant success in efforts to get medical care
for her. Within just a week, it raised about $234,000, an equivalent of N37
million through kind gestures from individuals and groups for her treatment at
John Hopkins Hospital.
Kwajafa , just back from the United States, told Sunday Sun that “prior to the
complications which arose, what made a determination of the full cost of
Okiki’s surgery difficult is that in modern times, it is an extremely rare
(perhaps singular) medical condition with no precedence to draw estimates from.
“This latter fact also means that it is equally difficult to tell what other
medical complications may arise. An example are fluids that were retained in
her cranial cavity which have posed an unforeseen challenge and may have led to
a fatal infection.”
Kwajafa’s worry is that, “OkikiJesu may not be released from hospital until all
outstanding bills have been paid. We and her parents are desirous of her
condition being fully remedied before she leaves the hospital.” Against this
backdrop, he said “We would like to appeal to the global public to support our
cause in ensuring that OkikiJesu Olawuyi lives.”
Medical analysts believe she will be a living testimony if she recovers.
According to GIPLC, her case remains the only one of its kind in the world.
When OkikiJesu’s father, Mr. Olawuyi spoke to Sunday Sun on telephone from John
Hopkins Hospital, he expressed optimism that the girl was doing well and had
remained in stable condition. He said “We thank God that she is responding
positively to every operation performed on her. The doctors attending to her
are also pleased with her present condition. They said she is a miracle
child,because she is so far the only child in the world with this kind of
health condition.
“They told us that there is no case of her type in medical history at their
disposal the world over. There are three renowned doctors attending to
OkikiJesu and the experience is so great.
“They keep assuring us that everything will be fine soon. We are also hoping
positively and asking God to deliver our child.”
In a voice laden with emotion, he appealed to Nigerians to assist the child to
live through their generous donations, pointing out that with money available,
the baby was sure to survive.
“But our greatest challenge here is the cost of her treatment in the hospital.
It’s indeed a very tough experience for us as parents.
The medical bill keeps increasing daily and has since been piling up. The
treatment has over-shot the initial bill that was given to us before we came,
because her condition exceeded their estimation.
The major issue is the hospital bill and not really our up-keep, that is,
myself, my wife and our 15-month old baby, (Okiki’s younger sister). She is
currently at the intensive care unit (ICU). This costs between $6,000 and
$10,000 daily. Sometimes, two nurses are stationed to take care of her daily
and it costs a lot of money.
“The good thing is that they are not taking any chance. They are all over her
all the time. They are monitoring her regularly especially as she is an
international patient. The bill is growing higher,” he lamented.
Okiki’s father further stated that for “every parent of a child with this
critical health challenge, one only manages to sleep and to wake up hoping that
the next day would be different. We have gone through this trauma all this
while. Though, we have faith in God but every passing day, we are afraid for
her life. Here in the hospital, as critical as her condition is , we are living
and sharing her pains more so that the bills pile up every moment.
“We appeal to Nigerians not to give up on Okiki. With their support, God will
not disappoint us because she keeps improving daily. All the operations have
been very critical. They took bones from her hand and leg to construct her
skull. And she is doing fine.
“We appreciate efforts by all Nigerians including individuals, groups and
corporate organizations. Everybody has been very supportive. We thank the
Nigerian government, the National Assembly, and particularly the Speaker of the
House of Representatives, Honourable Aminu Tambuwal and other kind-hearted
people and members of our family for their support.
“On behalf of our daughter Okiki, and other children and parents in this
condition, we urge government to institute a Special Trust Fund to take care of
such rare and critical cases in the country. This fund should be adequately
funded to cater for such critical needs.
“For us, Okiki’s parents, we are in this condition but hope that one day God
will deliver us.
“In this situation, we repeat our appeal for quick intervention from the
government and other Nigerians. Our wish here is that others should be spared
this experience.
We plead further with government to establish a fund to cater for such children
in this condition.”
•Your donations go directly to Okiki’s account with John Hopkins Medical
International.
For more info call GIPLC on 08089693240, 08163183797, 08085101664